Kennedy Krieger Researchers Pinpoint Cause Of Rare Disease: Discovery Could Yield New Treatments And Maybe A Cure
The Baltimore Sun | Scott Calvert | May 17, 2013 It’s a dream Ida Heck never really expected to come true. Her family has raised about $1 million since 2005 for research into the rare disorder that afflicts her 8-year-old daughter, Jenna, resulting in cognitive deficits, seizures, long-lasting migraines, glaucoma in one eye and a red birthmark on [...]