Monthly Archives: October 2013

//October

LDP Students Join Bicyclist In Spreading Word About Sturge-Weber Syndrome

By | October 30th, 2013|Categories: Press Coverage|

Sussex Technical High School | LDP Students | Oct. 30, 2013 Sturge-Weber syndrome is a congenital disorder that affects the skin, the neurological system, and sometimes the eyes. Few people are familiar with the syndrome that affects about one in every 50,000 live births in the United States. However, many people may have seen patients that [...]

Ocean-To-Ocean Odyssey: Man Bikes Across America For A Cure

By | October 29th, 2013|Categories: Press Coverage|

Delaware Wave | Elaine Bean | Oct. 29, 2013 OCEAN CITY — On Sept. 8 at the Santa Monica Pier, a big-hearted man with local roots put on his helmet, adjusted his sunglasses and set out on a bike ride across America from the Pacific to the Atlantic. On Tuesday, 45 days later, Al DeCesaris Jr. [...]

Crossing America For Sturge-Weber Syndrome: Al DeCesaris Completes 3,000-Mile Bike Journey For His 9-Year-Old Niece

By | October 25th, 2013|Categories: Press Coverage|

Ocean City Today | Clara Vaughn | Oct. 25, 2013 Nine-year-old Jenna Heck has a port-wine stain birthmark on one side of her face, a characteristic of the rare neurological and skin disorder Sturge-Weber Syndrome. Her family has been raising money for research and treatment of the disorder over the last eight years, and even though [...]

Man Completes 3,000-Mile Bike Journey In OC; Trek Aimed To Spread SWS Awareness

By | October 25th, 2013|Categories: Press Coverage|

The Dispatch | Joanne Shriner | Oct. 25, 2013 OCEAN CITY – Al DeCesaris Jr. finished a 3,000-mile journey across the United States in Ocean City on Tuesday all in the name of his niece and others who suffer from Sturge-Weber Syndrome (SWS). Crossing America For A Cure is a fundraiser hosted by the Celebrate Hope Foundation, [...]

Al DeCesaris Rides His Bicycle From California To Ocean City To Raise Funds For A Cure

By | October 25th, 2013|Categories: Press Coverage|

South River Source | Mitchelle Stephenson | Oct. 25, 2013 On Monday, Al DeCesaris rode into the parking lot of Davidsonville Elementary School on his bicycle. This after having crossed the country by himself on his bike to raise money for Sturge–Weber syndrome, which afflicts his young niece Jenna Heck, a student at DES. DeCesaris was [...]

Pedal Power Brings Fight Against Rare Disease To Davidsonville: Uncle Of Fourth-Grader With SWS Rides Bike Across The Country To Raise Funds, Awareness

By | October 24th, 2013|Categories: Press Coverage|

The Baltimore Sun | David Driver | Oct. 24, 2013 Al DeCesaris turned his bicycle off Central Avenue and into the parking lot of Davidsonville Elementary School and pedaled about 100 yards before he was greeted by a band of loud, cheering fourth-graders carrying homemade signs and posters. DeCesaris, 40, an attorney who recently moved from [...]

Sturge-Weber Syndrome: Sussex Tech Next-To-Last Stop In Cross-Country Bike Hike Raising Awareness, Funds

By | October 24th, 2013|Categories: Press Coverage|

Sussex County Post | Glenn Rolfe | Oct. 24, 2013 GEORGETOWN — Annapolis native Al DeCesaris says he isn’t a super athlete, nor is he a great biker. He is not at all fond of armadillos, snakes and spiders, particularly tarantulas. On his Pacific to Atlantic cross-country biking mission to raise awareness and funds for research and [...]

Ocean-To-Ocean Odyssey: Man Bikes Across America For A Cure

By | October 23rd, 2013|Categories: Press Coverage|

The Daily Times | Elaine Bean | Oct. 23, 2013 OCEAN CITY — On Sept. 8 at the Santa Monica Pier, a big-hearted man with local roots put on his helmet, adjusted his sunglasses and set out on a bike ride across America from the Pacific to the Atlantic. On Tuesday, 45 days later, Al DeCesaris [...]

St. Mary’s Graduate Bikes 3,000 Miles To Help His Niece: He Rode To Raise Money, Awareness Of Rare Syndrome

By | October 22nd, 2013|Categories: Press Coverage|

The Capital | Tim Prudente | Oct. 22, 2013 There might have been times when Al DeCesaris didn’t think he could bicycle across America. But after about 3,000 miles and more than 40 days on the road, “Uncle Al” was to arrive Monday at Davidsonville Elementary School. There, some fourth-graders already knew about the port-wine birthmark [...]