Running so a Cure may be Found

By |2020-12-23T04:30:25+00:00June 2nd, 2016|Categories: Press Coverage|Tags: , , , |

In each of us is the power to make a difference. This isn’t just rhetoric. This is something I wholeheartedly believe, something I’ve observed time and again. So when the cause of Sturge-Weber Syndrome — the rare neurological disorder that afflicts my 10-year-old niece Jenna, was discovered, I knew it was my time to help further [...]

Riva Resident Runs Maine-Florida For Rare Disease

By |2020-12-23T04:24:17+00:00May 23rd, 2016|Categories: Press Coverage|Tags: , , , |

Arundel NewsNetwork | Anna Lucente Hoffmann | May 23, 2016 For one Annapolis man, it wasn’t enough to ride his bike across the country to raise awareness about a rare medical disorder. He’s now traveled coast to coast on foot for the same cause. Riva resident Al DeCesaris recently finished up a run down the East [...]

Davidsonville Author-Advocate Publishes Second Book

By |2020-12-23T04:24:49+00:00May 12th, 2016|Categories: Press Coverage|Tags: , , , |

Capital Gazette | Wendi Winters | May 12, 2016 Local attorney turned author and advocate Al DeCesaris of Davidsonville has published his second book, “Running the Coast for a Cure,” which details his 93-day, 14 state, 1,935 mile solo run along the East Coast, from Lubec, Maine to Key Largo, Florida in 2014. He ran an [...]

Annapolis Resident Bikes America For A Cause: DeCesaris’ Book Details 2013 Cross-Country Trek

By |2020-12-23T04:25:18+00:00July 13th, 2015|Categories: Press Coverage|Tags: , , , |

Capital Gazette | Brandi Bottalico | July 13, 2015 Al DeCesaris thought biking across the country sounded more manageable than running. So he bought a bike and three weeks later hit the road. “Little did I know.” The Annapolis resident wanted to do something “out of the box” to raise awareness for Sturge-Weber syndrome, a neurological [...]

University Of Delaware Alumni: Class Notes

By |2020-12-23T04:25:45+00:00April 1st, 2015|Categories: Press Coverage|

University of Delaware Messenger | Volume 23, Number 1 | Artika Casini | April 2015 Al DeCesaris, AS95, has never run a marathon. But on December 9, 2014, he completed a 1,935-mile run in honor of his niece, Jenna Heck, who was born with Sturge-Weber Syndrome (SWS), a rare neurological disorder with no cure. His “Running the Coast [...]

Man Completes Coastal Run For Charity: Al DeCesaris Ran 1,900 Miles To Raise Money For Neurological Syndrome That Afflicts His Niece

By |2020-12-23T04:26:14+00:00December 28th, 2014|Categories: Press Coverage|Tags: , , , |

Capital Gazette | Wendi Winters | December 28, 2014 Annapolis lawyer Albert “Al” DeCesaris says he’s “an average guy,” but he didn’t pick an average way to raise money for a niece who suffers from a rare medical condition. On Dec. 9, DeCesaris completed a 93-day, 1,935-mile fundraising run from Lubec, Maine, all the way down [...]

1,900 Miles For A Cure: Al DeCesaris Is Running Down The East Coast For Sturge-Weber Syndrome

By |2020-12-23T04:26:42+00:00October 30th, 2014|Categories: Press Coverage|Tags: , , , |

Bay Weekly | Volume XXII, Number 44 | Bob Melamud | October 30, 2014 Millions of people dump ice water on their heads to raise money for ALS. Hundreds of thousands walk for breast cancer. Can one lone person hope to make a difference? Especially fighting a plight out of the limelight? Annapolis lawyer and St. [...]

Al DeCesaris Marks Half-Way Point in Trek From Maine to Florida with a Run at Davidsonville Park

By |2020-12-23T04:27:21+00:00October 21st, 2014|Categories: Press Coverage|

South River Source | Author | October 21, 2014 About six weeks ago, local attorney Al DeCesaris set off on foot from Lubec, Maine to help raise money and awareness for Sturge-Weber Syndrome (SWS), a rare neurological disease that afflicts his young niece, Jenna Heck, a student at Davidsonville Elementary. DeCesaris’ plan is to run the [...]

A Journey of Endurance For A Cause

By |2020-12-23T04:27:54+00:00October 3rd, 2014|Categories: Press Coverage|

The Weekly Sentinel | Volume 10, Issue No. 40 | October 3, 2014 A Maryland man running on foot from Lubec, Maine to Key Largo, Florida passed through southern Maine last week in a quest to raise public awareness and funds for the fight against Sturge-Weber Syndrome (SWS). Al DeCesaris began running on September 8 in [...]

Running From Maine To Florida – Just ‘Cause

By |2020-12-23T04:28:28+00:00September 24th, 2014|Categories: Press Coverage|

Machias Valley News Observer | Bill Kitchen | September 24, 2014 So you want to go to Florida for the winter but can’t really afford it? You could always run. That’s exactly what Al DeCesaris of Annapolis, MD has set out to do to raise awareness and funding for a little known but devastating and rare [...]

Go to Top