Press Coverage

/Press Coverage

St. Mary’s Graduate Bikes 3,000 Miles To Help His Niece: He Rode To Raise Money, Awareness Of Rare Syndrome

By | October 22nd, 2013|Categories: Press Coverage|

The Capital | Tim Prudente | Oct. 22, 2013 There might have been times when Al DeCesaris didn’t think he could bicycle across America. But after about 3,000 miles and more than 40 days on the road, “Uncle Al” was to arrive Monday at Davidsonville Elementary School. There, some fourth-graders already knew about the port-wine birthmark [...]

Riding For A Cure: St. Mary’s Grad Biking Cross-Country To Raise Funds To Cure Sturge-Weber Syndrome

By | September 8th, 2013|Categories: Press Coverage|

The Capital | Wendi Winters | Sept. 8, 2013 St. Mary’s High School Class of 1991 graduate Al DeCesaris doesn’t have a spouse or any children of his own. But on Sunday, he’s heading out on a solo cross-country bike ride from Santa Monica, Calif., to Annapolis, before his grand finish in Ocean City. DeCesaris, 40, [...]

Bicycling For A Cure: A Cross-Country Bike Trip To Find A Cure For A Devastating Disease Will Kick Off On Sunday In Santa Monica

By | September 7th, 2013|Categories: Press Coverage|

Santa Monica Patch | Karen Jordan | Sept. 7, 2013 It is 24 hours away and counting until Al DeCesaris, Jr., will embark on a cross-country trip unlike any he has ever made before. DeCesaris, who just relocated to Southern California from Maryland three months ago, is heading back to the East Coast in a fundraising [...]

Al DeCesaris Will Ride Bicycle Across U.S. For Davidsonville Niece With Sturge-Weber Syndrome

By | July 25th, 2013|Categories: Press Coverage|

South River Source | Mitchelle Stephenson | July 25, 2013 Al DeCesaris, Jr.  plans to ride his bicycle from Santa Monica, Calif., to Ocean City Maryland. That’s right — from sea to shining sea. He’s doing it for his niece, Jenna Heck, a Davidsonville tween with Sturge-Weber Syndrome (SWS), a devastating neurological disorder. The purpose of the ride is to [...]

Kennedy Krieger Researchers Pinpoint Cause Of Rare Disease: Discovery Could Yield New Treatments And Maybe A Cure

By | May 17th, 2013|Categories: Press Coverage|

The Baltimore Sun | Scott Calvert | May 17, 2013 It’s a dream Ida Heck never really expected to come true. Her family has raised about $1 million since 2005 for research into the rare disorder that afflicts her 8-year-old daughter, Jenna, resulting in cognitive deficits, seizures, long-lasting migraines, glaucoma in one eye and a red birthmark on [...]