Riding For A Cure: St. Mary’s Grad Biking Cross-Country To Raise Funds To Cure Sturge-Weber Syndrome

By |2020-12-23T04:38:50+00:00September 8th, 2013|Categories: Press Coverage|

The Capital | Wendi Winters | Sept. 8, 2013 St. Mary’s High School Class of 1991 graduate Al DeCesaris doesn’t have a spouse or any children of his own. But on Sunday, he’s heading out on a solo cross-country bike ride from Santa Monica, Calif., to Annapolis, before his grand finish in Ocean City. DeCesaris, 40, [...]

Bicycling For A Cure: A Cross-Country Bike Trip To Find A Cure For A Devastating Disease Will Kick Off On Sunday In Santa Monica

By |2020-12-23T04:39:19+00:00September 7th, 2013|Categories: Press Coverage|

Santa Monica Patch | Karen Jordan | Sept. 7, 2013 It is 24 hours away and counting until Al DeCesaris, Jr., will embark on a cross-country trip unlike any he has ever made before. DeCesaris, who just relocated to Southern California from Maryland three months ago, is heading back to the East Coast in a fundraising [...]

Al DeCesaris Will Ride Bicycle Across U.S. For Davidsonville Niece With Sturge-Weber Syndrome

By |2020-12-23T04:39:47+00:00July 25th, 2013|Categories: Press Coverage|

South River Source | Mitchelle Stephenson | July 25, 2013 Al DeCesaris, Jr.  plans to ride his bicycle from Santa Monica, Calif., to Ocean City Maryland. That’s right — from sea to shining sea. He’s doing it for his niece, Jenna Heck, a Davidsonville tween with Sturge-Weber Syndrome (SWS), a devastating neurological disorder. The purpose of the ride is to [...]

Kennedy Krieger Researchers Pinpoint Cause Of Rare Disease: Discovery Could Yield New Treatments And Maybe A Cure

By |2020-12-23T04:40:19+00:00May 17th, 2013|Categories: Press Coverage|

The Baltimore Sun | Scott Calvert | May 17, 2013 It’s a dream Ida Heck never really expected to come true. Her family has raised about $1 million since 2005 for research into the rare disorder that afflicts her 8-year-old daughter, Jenna, resulting in cognitive deficits, seizures, long-lasting migraines, glaucoma in one eye and a red birthmark on [...]

Go to Top