Thank you for supporting our efforts to find a cure for Sturge-Weber Syndrome! Donations made through this website go to Celebrate Hope Foundation, Inc., an IRS registered 501(c)(3) nonprofit charitable organization, and are tax-deductible. Celebrate Hope Foundation, Inc. uses the money raised to fund medical research being conducted at the Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute in Baltimore, Maryland. Together we are giving hope to my niece Jenna and all those suffering with Sturge-Weber Syndrome!

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Celebrate Hope Foundation, Inc. (Tax ID #46-2311281) is an IRS registered 501(c)(3) nonprofit charitable organization dedicated to improving the quality of life of those affected by Sturge-Weber Syndrome and port-wine birthmarks. Its mission is to create awareness and raise funds for Sturge-Weber research and further the efforts to find a cure.

Since its inception, Celebrate Hope Foundation, Inc. has hosted a number of charitable events and athletic endeavors including Bands on the Bay, Crossing America For A Cure, and Running The Coast For A Cure and has raised over 1.25 million dollars for Sturge-Weber research.

Note: Al DeCesaris is the Vice President of Celebrate Hope Foundation, Inc.’s Board of Directors. He receives no pay or other compensation from Celebrate Hope Foundation, Inc. nor does he receive any portion of any donation received.