Sturge-Weber Syndrome

/Tag:Sturge-Weber Syndrome

FACES (Finding A Cure For Epilepsy And Seizures) article

By | November 16th, 2016|Categories: Press Coverage|Tags: , , , , |

FACES | Al DeCesaris | Nov. 2016 It wasn’t until my niece Jenna was born that my eyes were opened. And it wasn’t until I saw what children like Jenna are made to endure that my view of the world started to change. Jenna was born with Sturge-Weber Syndrome – a rare neurological disorder that causes [...]

I Ran A Marathon Each Day to Raise Awareness for My Niece’s Rare Disease

By | June 2nd, 2016|Categories: Press Coverage|Tags: , , , , |

The Mighty | Al DeCesaris | June 2, 2016 In each of us is the power to make a difference. This isn’t just rhetoric. This is something I wholeheartedly believe, something I’ve observed time and again. So when the cause of Sturge-Weber Syndrome — the rare neurological disorder that afflicts my 10-year-old niece Jenna, was discovered, [...]

Riva Resident Runs Maine-Florida For Rare Disease

By | May 23rd, 2016|Categories: Press Coverage|Tags: , , , , |

Arundel NewsNetwork | Anna Lucente Hoffmann | May 23, 2016 For one Annapolis man, it wasn’t enough to ride his bike across the country to raise awareness about a rare medical disorder. He’s now traveled coast to coast on foot for the same cause. Riva resident Al DeCesaris recently finished up a run down the East [...]

Davidsonville Author-Advocate Publishes Second Book

By | May 12th, 2016|Categories: Press Coverage|Tags: , , , , |

Capital Gazette | Wendi Winters | May 12, 2016 Local attorney turned author and advocate Al DeCesaris of Davidsonville has published his second book, “Running the Coast for a Cure,” which details his 93-day, 14 state, 1,935 mile solo run along the East Coast, from Lubec, Maine to Key Largo, Florida in 2014. He ran an [...]

Annapolis Resident Bikes America For A Cause: DeCesaris’ Book Details 2013 Cross-Country Trek

By | July 13th, 2015|Categories: Press Coverage|Tags: , , , , |

Capital Gazette | Brandi Bottalico | July 13, 2015 Al DeCesaris thought biking across the country sounded more manageable than running. So he bought a bike and three weeks later hit the road. “Little did I know.” The Annapolis resident wanted to do something “out of the box” to raise awareness for Sturge-Weber syndrome, a neurological [...]

Man Completes Coastal Run For Charity: Al DeCesaris Ran 1,900 Miles To Raise Money For Neurological Syndrome That Afflicts His Niece

By | December 28th, 2014|Categories: Press Coverage|Tags: , , , , |

Capital Gazette | Wendi Winters | December 28, 2014 Annapolis lawyer Albert “Al” DeCesaris says he’s “an average guy,” but he didn’t pick an average way to raise money for a niece who suffers from a rare medical condition. On Dec. 9, DeCesaris completed a 93-day, 1,935-mile fundraising run from Lubec, Maine, all the way down [...]

1,900 Miles For A Cure: Al DeCesaris Is Running Down The East Coast For Sturge-Weber Syndrome

By | October 30th, 2014|Categories: Press Coverage|Tags: , , , , |

Bay Weekly | Volume XXII, Number 44 | Bob Melamud | October 30, 2014 Millions of people dump ice water on their heads to raise money for ALS. Hundreds of thousands walk for breast cancer. Can one lone person hope to make a difference? Especially fighting a plight out of the limelight? Annapolis lawyer and St. [...]