The Weekly Sentinel | Volume 10, Issue No. 40 | October 3, 2014 A Maryland man running on foot from Lubec, Maine to Key Largo, Florida passed through southern Maine last week in a quest to raise public awareness and funds for the fight against Sturge-Weber Syndrome (SWS). Al DeCesaris began running on September 8 in [...]
Machias Valley News Observer | Bill Kitchen | September 24, 2014 So you want to go to Florida for the winter but can’t really afford it? You could always run. That’s exactly what Al DeCesaris of Annapolis, MD has set out to do to raise awareness and funding for a little known but devastating and rare [...]
Quoddy Tides | J.D. Rule | Sept. 12, 2014 Al DeCesaris is a dedicated man. He pulled out of Lubec on September 8 and expects to reach Key Largo, Fla., in 90 days. Ninety day of running, that is, for approximately 2,000 miles. He has already crossed the continent by bicycle, all to draw public awareness [...]
Sussex Technical High School | LDP Students | Oct. 30, 2013 Sturge-Weber syndrome is a congenital disorder that affects the skin, the neurological system, and sometimes the eyes. Few people are familiar with the syndrome that affects about one in every 50,000 live births in the United States. However, many people may have seen patients that [...]
Delaware Wave | Elaine Bean | Oct. 29, 2013 OCEAN CITY — On Sept. 8 at the Santa Monica Pier, a big-hearted man with local roots put on his helmet, adjusted his sunglasses and set out on a bike ride across America from the Pacific to the Atlantic. On Tuesday, 45 days later, Al DeCesaris Jr. [...]
Ocean City Today | Clara Vaughn | Oct. 25, 2013 Nine-year-old Jenna Heck has a port-wine stain birthmark on one side of her face, a characteristic of the rare neurological and skin disorder Sturge-Weber Syndrome. Her family has been raising money for research and treatment of the disorder over the last eight years, and even though [...]
The Dispatch | Joanne Shriner | Oct. 25, 2013 OCEAN CITY – Al DeCesaris Jr. finished a 3,000-mile journey across the United States in Ocean City on Tuesday all in the name of his niece and others who suffer from Sturge-Weber Syndrome (SWS). Crossing America For A Cure is a fundraiser hosted by the Celebrate Hope Foundation, [...]
South River Source | Mitchelle Stephenson | Oct. 25, 2013 On Monday, Al DeCesaris rode into the parking lot of Davidsonville Elementary School on his bicycle. This after having crossed the country by himself on his bike to raise money for Sturge–Weber syndrome, which afflicts his young niece Jenna Heck, a student at DES. DeCesaris was [...]
The Baltimore Sun | David Driver | Oct. 24, 2013 Al DeCesaris turned his bicycle off Central Avenue and into the parking lot of Davidsonville Elementary School and pedaled about 100 yards before he was greeted by a band of loud, cheering fourth-graders carrying homemade signs and posters. DeCesaris, 40, an attorney who recently moved from [...]
Sussex County Post | Glenn Rolfe | Oct. 24, 2013 GEORGETOWN — Annapolis native Al DeCesaris says he isn’t a super athlete, nor is he a great biker. He is not at all fond of armadillos, snakes and spiders, particularly tarantulas. On his Pacific to Atlantic cross-country biking mission to raise awareness and funds for research and [...]
